For further reading on our family’s journey
This is an article that appeared in the Goshen News on September 18, 2013 that was written about our family’s journey with Sarah:
Beyond the Face
Here is our family Facebook page for recent updates and networking.
Helpful websites related to craniofacial conditions
Here is a non-profit organization called Children’s Craniofacial Association which assisted us with travel expenses for Sarah’s CVR surgery; they also sent a care package for both Sarah and Felicity. Please support them in any way you can!
Here is Riley Hospital’s Craniofacial Department Website. They have been absolutely superb in assisting us and in Sarah’s treatment, care and follow-ups. We intend to support them further and hope you will, too!
We recently heard about a non-profit organization called Heads Up!!!, which is located in southern Indiana and directly serves Riley Hospital’s Craniofacial Department as a fundraiser for them. Check them out.
This is an organization that actually fully funds surgeries for those with craniofacial anomalies, depending upon qualifications. They are called Fresh Start, so please check it out and refer someone you know who may be eligible and benefit from their charity.
Zofran Legal aims to reach as many people as possible who are seeking information relating to craniofacial conditions and provide education and quick access
to further information on the topic.